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gedyrivera: This blog post is a call to action. I need your help. For the past year, my sister Leilani (@heanvnlyflwr) has been a caregiver to two amazing young men, Mike & Joey Pizzurro.  Mike & Joey have a condition called Giant Axonal Neuropathy (GAN); a condition so rare that approximately 20 cases in the entire world have been reported. GAN is so rare that there are no medicines to treat the condition, only its symptoms. The Pizzurro’s have been trying to obtain different grants to be able to pay for research so that they can improve the quality of Mike & Joey’s lives as well as to prolong them and eventually find a cure. I beg of you to take some time every day until the end of the month to text 101885 to 73774 (PEPSI). If you do, and they win, Pepsi will grant them $250,000 for this much needed research. Since last year, I have had the privilege of meeting Mike & Joey through Skype video and they are the most amazing human beings you will ever meet. They are both in their 20’s and are full of hope and desire to live every minute of their lives. Below is a video about them and the condition. I pray that you could help. Thank you, Gedy Mike’s Facebook & Joey’s Facebook

gedyrivera:

This blog post is a call to action. I need your help.

For the past year, my sister Leilani (@heanvnlyflwr) has been a caregiver to two amazing young men, Mike & Joey Pizzurro. 

Mike & Joey have a condition called Giant Axonal Neuropathy (GAN); a condition so rare that approximately 20 cases in the entire world have been reported. GAN is so rare that there are no medicines to treat the condition, only its symptoms. The Pizzurro’s have been trying to obtain different grants to be able to pay for research so that they can improve the quality of Mike & Joey’s lives as well as to prolong them and eventually find a cure.

I beg of you to take some time every day until the end of the month to text 101885 to 73774 (PEPSI). If you do, and they win, Pepsi will grant them $250,000 for this much needed research.

Since last year, I have had the privilege of meeting Mike & Joey through Skype video and they are the most amazing human beings you will ever meet. They are both in their 20’s and are full of hope and desire to live every minute of their lives.

Below is a video about them and the condition. I pray that you could help.

Thank you,

Gedy

Mike’s Facebook & Joey’s Facebook

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